Family Resources

Having a family member who is blind or visually impaired can affect many areas of family life. Parents and relatives face a variety of challenges when making decisions about education, rehabilitation and other services. Older adults may want information on resources, tools, or ways to learn new skills they need to live independently. These websites for families include information on workshops, services, education, and many other resources.

Written by the brother of a teen with deafblindness, the author makes an excellent case for teaching functional skills that are founded in basic concepts and supportive of daily living tasks.

Source: Kids OT

TSBVI provides this portal to several documents related to the National Agenda. Links include the agenda document in ASCII braille or Megadots, policy guidance for educators and parents, and an archive of the agenda's creation.

Source: Texas School for the Blind and Visually Impaired (TSBVI)

NAPVI "helps parents to find information and locate resources for their children. It also advocates on a national level for the resources necessary to educate those children."

A non-profit braille publisher, National Braille Press promotes the literacy of blind children through braille, and provides access to information that empowers blind people to actively engage in work, family, and community affairs.

NCDB is a national technical assistance and dissemination center for information about deafblindness. While most resources focus on the needs of children and youth, there is wealth of information here in the Adult Services section.

The NFADB is a non-profit, volunteer-based family association. Our philosophy is that individuals who are deaf-blind are valued members of society and are entitled to the same opportunities and choices as other members of the community. NFADB is the largest national network of families focusing on issues surrounding deaf-blindness.

"NOAH’s mission is to act as a conduit for accurate and authoritative information about all aspects of living with albinism and to provide a place where people with albinism and their families, in the United States and Canada, can find acceptance, support and fellowship."

Source: National Organization for Albinism and Hypopigmentation (NOAH)

Dedicated to creating "a climate of opportunity for blind children," the NOPBC "is a national membership organization of parents and friends of blind children reaching out to each other to give vital support, encouragement, and information." Sponsored by the National Federation of the Blind, NOPBC publishes Future Reflections, a publication for parents and families.

Source: National Federation of the Blind

Beth Jordan from Helen Keller National Center provides a roadmap through the array of residential and employment service possibilities that exist and the need for early planning.

Source: Perkins eLearning, Perkins School for the Blind

Project SALUTE explains object cues, a "concrete means of supporting conversational interactions and language development." Included are examples, advantages, disadvantages, and specific strategies; available in English and Spanish.

Source: Project SALUTE

A checklist of skills and knowledge necessary for teens who have recently experienced a vision loss. Also available in Spanish.

Source: FamilyConnect

American Foundation for the Blind maintains a list of organizations offering financial support for qualifying individuals and academic programs.  Browse them here.

Source: American Foundation for the Blind (AFB)

PACER is the Minnesota Parent Training and Information Center, funded by the U.S. Department of Education's Office of Special Education Programs.  Their website includes information about advocacy, public policy and legislation.

Source: PACER Center

Recommendations and guidelines on daily living skills for parents of children with visual impairments.

Source: Washington State School for the Blind (WSSB)

Written by parents raising children with combined hearing and vision losses, this manual is a "road map" for other parents in the same situation.

Source: Minnesota DeafBlind Technical Assistance Project

This two-page document offers tips to parents on the transition process. Also available in Spanish.

Source: PACER Center

Parent Susan Singler shares how good grooming and physical appearance were important to her son's socialization and acceptance, starting with his first months of life.

Source: FamilyConnect

This chapter from CBR: A Participatory Strategy in Africa features the Uganda Deaf/Blind Parents Association, and shows the importance of parents in community-based rehabilitation (PDF file).

Source: Source Humanity & Inclusion Project

Perkins' preschool program assesses each child's needs and creates an individualized program of education, teaming with clinical specialists and with parents on a coordinated home-school program.

Source: Perkins School for the Blind

For New England residents.