Family Resources

Having a family member who is blind or visually impaired can affect many areas of family life. Parents and relatives face a variety of challenges when making decisions about education, rehabilitation and other services. Older adults may want information on resources, tools, or ways to learn new skills they need to live independently. These websites for families include information on workshops, services, education, and many other resources.

Family stories, discussions, training opportunities and more!

Source: Families Matter National Center on Deaf-Blindness

This article from CEC's DVI Quarterly offers ideas on how to build play/exploration environments, how to highlight landmarks, and how to design mini-travel routes in a child's day.

Source: DVI Quarterly, 2005

A 122-page guide for family members searching for a support group or advocacy organization. Includes the inspirational stories of seven such organizations in southern Africa, South Asia, Europe and Australia (PDF file).

Source: Enabling Education Network

Serving families in Florida, this organization sponsors an annual conference for individuals with disabilities and their families. Attendees can meet with state agencies, non-profit organizations, service providers, and most importantly, other families. 

Offers support and information to families of children with visual impairments.

Source: Oregon Deafblind Project

Funded by the Massachusetts Department of Public Health, this website offers support to parents and families who have a child with special needs. It features information on workshops, a resource directory, a mailing list, and the opportunity to be personally matched by trained staff with another parent who is facing similar issues.

This comprehensive site "gives parents of visually impaired children a place to support each other, share stories and concerns, and find resources on raising their children from birth to adulthood."

Source: The American Printing House for the Blind (APH)

ASHA explains the nature of feeding and swallowing disorders, their signs and symptoms, diagnosis, and treatment.

Source: American Speech-Language-Hearing Association

These suggestions are designed to help make mealtime a more pleasant experience.

Source: Royal National Institute of Blind People (RNIB)

AFB offers advice and resources to parents who have just learned that their infant is blind or visually impaired. Topics include: Finding Help, Questions to Ask Your Child's Eye Specialist, Your Rights as Parents, as well as tips for parenting children of different ages.

Source: American Foundation for the Blind

Audio and print articles on IEPs, Education Law, Self-Advocacy, and NFB Activity in this area.

Source: National Federation of the Blind, 2013

This article talks about the importance of establishing a routine for diapering and elimination before formal toilet training begins.

Source: FamilyConnect for Parents of Children with Visual Impairments

Parents can learn practical tips to help their babies with visual impairments develop normal sleep patterns.

Source: FamilyConnect for Parents of Children with Visual Impairments

Psychologist offers suggestions to address sleeping challenges for children who are blind or visually impaired in this video webcast

Source: Perkins School for the Blind, Perkins eLearning

Jan Bailey describes her experience growing up without sight, and notes the positive influence of high parental expectations.

Source: Future Reflections, Fall 1990

Seven qualified blind and visually impaired teens aged 14 to 17 are selected to explore the companionship, independence and responsibility of the Guide Dog mobility lifestyle. Campers will stay in our student residence, and will need to be able to care for their own activities of daily living. Call to apply.

Information and resources about grants and scholarships, taxes, and financial help for people with disabilities. The scholarship information is organized by type of disability, e.g., hearing, vision, etc.

Source: Money Geek

The Minger Foundation is named for Michael Minger, who perished in a fire while he was a college student.  The Foundation is dedicated to preventing deaths like Michael's by preparing students with disabilities to respond to dangerous situations, particularly fire. The link above leads you to Train the Trainer materials for teaching fire safety to students with disabilities. The project site contains downloadable resources, and training videos.

Source: The Minger Foundation

Includes visual screening importance, guidelines, and procedures.

Source: Colorado Department of Education

This is a step-by-step guide to a technique to help your baby sleep independently for longer periods of time.

Source: WonderBaby.org

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