Family Resources

Having a family member who is blind or visually impaired can affect many areas of family life. Parents and relatives face a variety of challenges when making decisions about education, rehabilitation and other services. Older adults may want information on resources, tools, or ways to learn new skills they need to live independently. These websites for families include information on workshops, services, education, and many other resources.

This article includes a list of simple activities to help children understand the world around them.  It includes activities in the home, in the park or garden, in the kitchen, at the store, and out and about.

Source: WonderBaby.org

Ben Chamberlin, a teacher at Perkins School for the Blind shows educators how to support grooming, hygiene, self-esteem, and social awareness in their students who are visually impaired.

Source: Perkins eLearning Webinar

This site has short definitions of many vision disorders and a few words about treatment and assistive technology. Includes links to support groups for the specific disorder or condition.

Source: FamilyConnect

Fact sheets on all aspects of deafblindness, including communication, routines, the importance of touch, and more.

Source: California Deaf-Blind Services (CDBS)

This two-page fact sheet provides parents with a basic introduction to IEP goals and objectives, including some specific examples. This link takes you to a reprint of this information in Future Reflections.

Source: Families and Advocates Partnership for Education (FAPE)

In this keynote address for the Discover Conference, speakers Dr, Katharine Shepherd & Susan LaVenture share their personal and professional experiences to illustrate the powerful role that parents play in children’s lives.

Source: Perkins eLearning

Sponsored by the National Center on Deaf-Blindness, the purpose of this site is to bring a network of people and organizations together to share ideas, resources and support for leadership training for parents and other family members of individuals with disabilities.

Source: National Center on Deaf-Blindness (NCDB)

Family stories, discussions, training opportunities and more!

Source: Families Matter National Center on Deaf-Blindness

This article from CEC's DVI Quarterly offers ideas on how to build play/exploration environments, how to highlight landmarks, and how to design mini-travel routes in a child's day.

Source: DVI Quarterly, 2005

A 122-page guide for family members searching for a support group or advocacy organization. Includes the inspirational stories of seven such organizations in southern Africa, South Asia, Europe and Australia (PDF file).

Source: Enabling Education Network

Serving families in Florida, this organization sponsors an annual conference for individuals with disabilities and their families. Attendees can meet with state agencies, non-profit organizations, service providers, and most importantly, other families. 

Offers support and information to families of children with visual impairments.

Source: Oregon Deafblind Project

Funded by the Massachusetts Department of Public Health, this website offers support to parents and families who have a child with special needs. It features information on workshops, a resource directory, a mailing list, and the opportunity to be personally matched by trained staff with another parent who is facing similar issues.

This comprehensive site "gives parents of visually impaired children a place to support each other, share stories and concerns, and find resources on raising their children from birth to adulthood."

Source: The American Printing House for the Blind (APH)

ASHA explains the nature of feeding and swallowing disorders, their signs and symptoms, diagnosis, and treatment.

Source: American Speech-Language-Hearing Association

These suggestions are designed to help make mealtime a more pleasant experience.

Source: Royal National Institute of Blind People (RNIB)

AFB offers advice and resources to parents who have just learned that their infant is blind or visually impaired. Topics include: Finding Help, Questions to Ask Your Child's Eye Specialist, Your Rights as Parents, as well as tips for parenting children of different ages.

Source: American Foundation for the Blind

Audio and print articles on IEPs, Education Law, Self-Advocacy, and NFB Activity in this area.

Source: National Federation of the Blind, 2013

Parents can learn practical tips to help their babies with visual impairments develop normal sleep patterns.

Source: FamilyConnect for Parents of Children with Visual Impairments

Pages