Deafblindness Resources

These resources relate specifically to deafblindness (Scout also provides more general resources about multiple disabilities). Students who are deafblind have unique educational challenges, but there are also organizations, communities, and groups that focus on deafblindness. The resources here include material for parents, teachers, and individuals.

NCDB hosts a portal page on their website with an overview on the work of Dr. Lilli Nielsen, with links to key resources

Source: National Consortium on Deaf-Blindness (NCDB)

NCDB offers extensive resources on literacy, including products, articles, publications, bibliographies, Internet resources, and research.

Source: National Consortium on Deaf-Blindness (NCDB)

Presenters from the Perkins Deafblind program describe the types of vision loss they encounter (total blindness, low vision, CVI) and the use of the appropriate materials for young learners who are deafblind.

Source: Perkins eLearning Webinar

Patricia Weismer and Deirdre Leech list activities to make literacy fun for students with deafblindness. Requires Adobe Acrobat Reader.

Source: In Touch, 2008, New England Consortium of Deafblind Projects

Barbara Miles defines literacy, its social functions, and the conditions necessary for its development. She includes numerous specific suggestions and activities to increase literacy skills.

Source: DB-LINK

MAJAK is a residential community for deaf-blind adults.  View residents art projects, watch videos, and download materials.  Educators may gain some fresh project ideas here as well.

Source: MAJAK (Lighthouse) of Slovakia

This tip sheet offers specific suggestions to assist a child in understanding and adjusting to changes in routine.

Source: California Deaf-Blind Services

New Visions offers information to professionals and parents working with infants and children with feeding, swallowing, oral-motor, and pre-speech problems.

Source: New Visions

In this recorded webinar, Steve Perreault talks about issues related to transition for students with deafblindness.

Source: Perkins eLearning

This section of the Family Connect site is a gold mine for parents and other family members who are looking for information and resources on children who have additional disabilities.

Source: FamilyConnect

Written by the brother of a teen with deafblindness, the author makes an excellent case for teaching functional skills that are founded in basic concepts and supportive of daily living tasks.

Source: Kids OT

NCDB is a national technical assistance and dissemination center for information about deafblindness. While most resources focus on the needs of children and youth, there is wealth of information here in the Adult Services section.

The Annual Child Count provides a "snapshot of the characteristics, educational settings, and living arrangements of children and youth who are deafblind."

Source: NCDB (National Center on Deaf-Blindness)

Provides information and technical assistance to families, teachers, government, and local agencies on all topics related to children and youth with deafblindness.

The NFADB is a non-profit, volunteer-based family association. Our philosophy is that individuals who are deaf-blind are valued members of society and are entitled to the same opportunities and choices as other members of the community. NFADB is the largest national network of families focusing on issues surrounding deaf-blindness.

General guidelines for developing programs for students with visual impairment and additional disabilities, including deafblindness. Includes background information, the range of service delivery options, Indian disability legislation, resources for teacher training, and sample forms.

Source: Voice and Vision (India)

This study by National Technical Assistance Consortium for Children and Young Adults Who are Deaf-Blind (NTAC) "surveyed the parents/guardians of 97 youth (ages 18-24) … who are deaf-blind and who left school in June 1996." The findings support the need for services that promote development of communication and literacy, education with nondisabled peers, real job experience, and transition services that begin much earlier.

Source: National Consortium on Deaf-Blindness

This 13-page paper outlines some of the key issues in the provision of services in natural environments.  It describes the unique developmental needs of children with visual impairments and offers strategies for services and advocacy.

Source: Perkins School for the Blind

Dedicated to enhancing educational services provided to students under 21 with vision and hearing impairments, this organization provides on-site assistance, support resources to parents and educators. Also in Spanish.

Beth Jordan from Helen Keller National Center provides a roadmap through the array of residential and employment service possibilities that exist and the need for early planning.

Source: Perkins eLearning, Perkins School for the Blind

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