Deafblindness Resources

These resources relate specifically to deafblindness (Scout also provides more general resources about multiple disabilities). Students who are deafblind have unique educational challenges, but there are also organizations, communities, and groups that focus on deafblindness. The resources here include material for parents, teachers, and individuals.

TSBVI Outreach VI Consultant Scott Baltisberger demonstrates how to make a cardboard calendar box.

Part 1

Part 2

Source: Texas School for the Blind and Visually Impaired (TSBVI)

The iCanConnect program distributes communication equipment to qualifying people who are deafblind. This page has a good introduction to the various forms of assistive technology.

Source: The National Deaf-Blind Equipment Distribution Program

This webpage offers NCDB products, links to articles and other publications, and Internet resources.

Source: National Consortium on Deaf-Blindness (NCDB)

In this two-page fact sheet, parents learn what they can do before, during, and after the IEP team meeting, with real life examples. Available in Spanish, Hmong, Somali.

Source: Center for Parent Information and Resources

This document contains a two page checklist for families to use to prepare for an Individualized Education Program (IEP) meeting, to keep track of items discussed during the meeting and to monitor items requiring follow up. A form to list resources is included. This material references the original Deafblindness: Educational Service Guidelines publication.

A Spanish version is also available. Spanish (PDF)

Source: Perkins School for the Blind

This checklist is "a tool to help parents who want to make sure that their child receives the special education and related services listed in their IEP."

Source: National Organization of Parents of Blind Children (NOPBC)

An overview of inclusive education. Addresses preparation and implementation, curricular approaches, communication, and a comparison of service delivery models.

Source: International Council for the Education of People with Visual Impairment (ICEVI)

This article includes sections on learning table skills, helping to prepare simple snacks and meals, and tips for good kitchen habits.

Source: FamilyConnect for Parents of Children with Visual Impairments

Millie Smith discusses the impact of current federal legislation on the development of IEPs for students with severe disabilities,” and examines research-based instructional strategies.

Source: Texas School for the Blind and Visually Impaired (TSBVI)

An excellent tutorial aimed at service providers who are beginning to work with people with deaf blindness. Includes background on visual effects of various causes of deafblindness, etiquette, sighted guide techniques, communication methods, and much more.

Source: The Interpreter's Friend

This article provides suggestions to consider when approaching toilet training with a child who has a visual impairment.

Source: FamilyConnect for Parents of Children with Visual Impairments

Statistics on blindness and visual impairment in the United Kingdom (England, Scotland, Wales, Northern Ireland)

Source: Royal National Institute of Blind People (RNIB)

Dr. Lea Hyvärinen, a Finnish ophthalmologist, shares information and resources on of pediatric vision tests and tests for assessment of visual capabilities in occupational health services and in assessment of low vision.  Available in multiple languages.

Includes video demonstrations, infant vision, lectures on assessment of functional vision, information for parents, assement of vision and hearing of individuals who are deafblind, and testing the vision of a child with Down Syndrome.

In this 6-page article, Deborah Chen outlines specific strategies for developing communication: observation, engaging the child's available senses, cues, key word signs, interrupted routine strategy, and selecting the child's first signs. (requires Adobe Acrobat Reader)

Source: California Deaf-Blind Services

This section of the Special Issue on Orientation and Mobility focuses on communicating with vision and hearing loss, and the use of hearing aids while traveling.

Source: VisionAware

This article describes Project PLAI (Promoting Learning through Active Interaction), the goal of which was to develop resource materials that early intervention programs could use to teach families how to promote their infants' communication development.

Source: Deaf-Blind Perspectives

NCDB hosts a portal page on their website with an overview on the work of Dr. Lilli Nielsen, with links to key resources

Source: National Consortium on Deaf-Blindness (NCDB)

NCDB offers extensive resources on literacy, including products, articles, publications, bibliographies, Internet resources, and research.

Source: National Consortium on Deaf-Blindness (NCDB)

Presenters from the Perkins Deafblind program describe the types of vision loss they encounter (total blindness, low vision, CVI) and the use of the appropriate materials for young learners who are deafblind.

Source: Perkins eLearning Webinar

Patricia Weismer and Deirdre Leech list activities to make literacy fun for students with deafblindness. Requires Adobe Acrobat Reader.

Source: In Touch, 2008, New England Consortium of Deafblind Projects