Deafblindness Resources

These resources relate specifically to deafblindness (Scout also provides more general resources about multiple disabilities). Students who are deafblind have unique educational challenges, but there are also organizations, communities, and groups that focus on deafblindness. The resources here include material for parents, teachers, and individuals.

Functional Vision Screening Tool and Functional Hearing Screening Tool in English and Spanish

Source: Illinois School for the Deaf

Created by a man with deafblindness, this information site is mostly for other people who are deafblind, but includes material for family members and service providers.

Martha Majors, of the Perkins Deafblind Program, defines literacy for students with blindness, deafblindness, or additional disabilities. and explores alignment of the curriculum with the Massachusetts Curriculum Frameworks. Requires Adobe Acrobat Reader.

Source: In Touch, 2008, New England Consortium of Deafblind Projects

A project developed between Penrickton Center for the Blind in Michigan, Perkins School for the Blind, and the Texas School for the Blind and Visually Impaired provides resources and a community of practice around the work of Dr. Lilli Nielsen and Active Learning. The site includes discussion of Active Learning principles, assessment, implementation, materials, equipment, and other events and resources. Active Learning is most effective for those with significant multiple disabilities and in the 0-48 month developmental level. 

This article by Lauren Lieberman offers some important guidelines for developing and adapting activities for people who are deafblind. Specific examples are included.

Source: National Center on Deaf-Blindness (NCDB)

In this webcast, Diana Autin presents family companion guides that include fact sheets, mini-guides and an IEP Meeting Checklist. These materials provide a framework to support the development of meaningful, appropriate programming for students with deafblindness. 

Source: Perkins eLearning

In this PowerPoint presentation, Dr. Mary Zatta talks about bringing a student's educational plan into alignment with state's curricular requirements, with specific examples from the Massachusetts Curriculum Frameworks.

Source: National Consortium on Deaf-Blindness (NCDB)

Read the full page of resources here, and browse the links below for additional information specific to children who are blind or visually impaired, deafblind, or who have additional disabilities including visual impairment.

Source: Center for Parent Information and Resources (formerly NICHCY)

AADB is a national consumer organization of, by, and for deafblind Americans and their supporters.

The American Printing House for the Blind is the world's largest producer of books and products for people who are blind or visually impaired. Founded in 1858, APH is the official supplier of educational materials for visually impaired K-12 students in the U.S.

Source: American Printing House for the Blind

Based on data from the Survey of Income and Program Participation (SIPP); includes information on visual impairment.

Source: U.S. Bureau of the Census

Assessing vision as part of an early intervention program for infants and children who have additional or multiple disabilities and visual impairment (MDVI).

Source: Scottish Sensory Centre

In this 11-page document, Sam Morgan describes biobehavioral states and explains why they are important when working with students with profound disabilities.

Source: Hunter College

This article introduces two ways to classify states of awareness in "individuals with profound disabilities."  (This is a scanned document and is not accessible to screen readers.)

Resources on various topics and services for individuals with vision impairment, legal blindness or deaf/blindness and intellectual disability.

Source: Commonwealth of Massachusetts

Statistics are drawn from AFB and U.S. government sources, and organized by age, ethnicity, geography, and more.

Source: National Federation of the Blind (NFB)

NFB offers many braille-related programs through its Jernigan Institute, including the Braille Certification Training Program for people who want to become braille transcribers.

Source: National Federation of the Blind (NFB)

The Blindness Resource Center is a valuable Internet resource for information about braille: description, history, Louis Braille's biography, legislative initiatives, organizations, advocacy, research, software, educational materials, and transcription services.

Source: New York Institute for Special Education

The braille section of the Paths to Literacy site offers an overview, instructional strategies, pre-braille, tactile graphics, technology for braille readers, sources of print/braille books, tools for writing braille, braille production, and brailler repair. Users may post content, and there is also a forum for questions and answers related to braille literacy.

Source: Paths to Literacy

Causes of deafblindness, their symptoms and progression.

Source: Sense International (India)

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