Causes of Blindness and Visual Impairment

This section connects the user to information about the causes of blindness and visual impairment. The Introduction and Overview section links to more general information, while the Diseases and Disorders section has sites with more detail about specific conditions, including symptoms, causes, diagnosis, prevention, treatment, and support groups. The Signs of Vision Disorders category advises the user about symptoms to be on the watch for.
 
Below is a list of topics you'll find in this section. Click on a title to jump to a specific topic.

 

Blindness and Visual Impairment: Introduction and Overview

V.I. Scotland
Thorough and well researched information about causes of blindness and visual impairment, as well as many medical conditions that can affect vision.
 
National Institute of Health
This US Government institute's site provides definitions, illustrations, causes of blindness, and advice on when to contact a medical professional.
 
Sightsavers International
In-depth illustrated descriptions of global causes of blindness and their treatments.
 
National Federation of the Blind (NFB)
Common eye conditions and causes of blindness in the United States; explained in non-clinical language accessible to the layperson.
 
World Health Organization (WHO)
Statistics and distribution data on global blindness; includes links to more information on high incidence eye diseases.
 
EyeHelp
Information on common eye conditions.
 
The Foundation of the American Academy of Ophthalmology
Facts on eye disease and treatment; free eye health educational materials.
 
National Eye Institute
This site has links to many free Full Text Pamphlets and booklets. Topics include age-related macular degeneration, cataract, diabetic retinopathy, and glaucoma.
 
American Optometric Association (AOA)
Symptoms and risk factors of eye and vision conditions.
 
Sarah J. Blake
Information about eye conditions and care, eye wear, and living with a visual impairment.
 
FamilyConnect for Parents of Children with Visual Impairments
This site has short definitions of many vision disorders and a few words about treatment and assistive technology. Includes links to support groups for the specific disorder or condition.
 
Foundation Fighting Blindness
Information on causes of and treatments for retinitis pigmentosa (RP), macular degeneration, usher syndrome, and the entire spectrum of retinal degenerative diseases.
 
RNIB
Links to simple guides on common eye conditions; listings of frequently searched sites.
 
VisionAware
Statistical data on adult vision loss in the US and the world, including information on primary causes, diagrams and pictures.
 
Vision Australia
Information on blindness and vision loss in Australia; links to fact sheets on twelve common causes of blindness and low vision.
 
New York Institute for Special Education
A wealth of information about eye diseases and conditions, including links to many resources.
 
Vision Australia
Fact sheets on a wide range of issues relating to blindness and vision impairment; available in braille, audio formats, and large and standard print.
 
Olmsted Center for the Visually Impaired
Discussion of the four major causes of blindness: diabetic retinopathy, cataract, glaucoma and macular degeneration.  
 
Department of Ophthalmology, Algemeen Ziekenhuis, Sint-Jozef, Turnhout, Belgium
The main causes of blindness and visual disabilities worldwide; many of which are preventable.
 
The Low Vision Gateway
Descriptions of many eye diseases and conditions; links to related support groups.
 

Blindness and Visual Impairment: Organizations and Resources to Explore

BlindNet
A jumping-off place for visiting websites with information about many eye conditions.
 
Schepens Eye Research Institute
Up-to-date, reliable information on the most common eye diseases and disorders; research on new treatments and diagnostic tools.
 
AFB provides a wealth of information and services to people who are blind or visually impaired, and their families, and for the professionals who serve them.
 
A nationwide agency with the mission "to enhance independence for people with vision loss and to be the leader in promoting vision health" in Canada; in English and French.
 
Lighthouse International
Information and resources for people living with blindness or visual impairments; includes sections on anatomy of the eye, eye disorders, prevention, and tips for confident living. The website contains a separate section for professionals.
 
This coalition of 55 professional, consumer, and industry organizations involved in eye and vision research works to achieve the best eye and vision care for all Americans through advocacy and public education.
 
This consumer group lists the causes of blindness in young adults and people over 65; includes links to sites with related medical information
 
One of the leading service agencies in the United Kingdom, RNIB offers practical support, advice, and imaginative solutions to anyone with a vision disorder.
 
Australia's leading provider of blindness and low vision services offers fact sheets, downloadable web accessibility tools, and useful links.
 
A "Self-Help for Vision Loss" web site that provides free, practical, hands-on information to enhance quality of life and independence for adults with vision loss, their families and friends, caregivers, and related professionals.
 

Diseases and Disorders That Cause Blindness and Visual Impairment

Below is a list of topics you'll find in this section. Click on a title to jump to a specific topic.
 

Age-Related Macular Degeneration (AMD or ARMD)

VisionAware
An overview, including signs and symptoms, an online video exploring adaptive technology, and additional resources.
 
Sacramento Network of Care
Causes, symptoms, diagnosis, and treatment of age-related macular degeneration, and suggestions for living with it.
 
National Eye Institute
This introduction to age-related macular degeneration includes an update on current research. Also available as a pdf.
 
Vision 2020
An exploration of the global prevalence of age-related macular degeneration.
 
Bright Focus Foundation
Formerly the American Health Assistance Foundation, Bright Focus provides consumer-friendly information about visual impairments like macular degeneration and glaucoma.

Age-Related Macular Degeneration (AMD or ARMD): Organizations and Resources to Explore

Information for people with age-related macular degeneration, their families, caregivers, and professionals.
 
Prevent Blindness America
An introduction to age-related macular degeneration and suggestions on living with the disease.
 
A wide array of information and resources.
 
The online newsletter on this site offers updates on research findings and practical tips for people with age-related macular degeneration.
 
Free information and personal assistance for people dealing with macular degeneration and similar retinal diseases.

Albinism

Perkins eLearning, Perkins School for the Blind
Earn ACVREP credits through this tutorial unit, that explores environmental adaptations for low vision and visually processing conditions, including albinism and CVI.
 
National Organization of Albinism and Hypopigmentation (NOAH)
Links to information about albinism, including issues specific to children, students, and medical patients who have albinism.

Amblyopia

Prevent Blindness America
Definition of amblyopia, causes and treatment

Aniridia  

Information about aniridia and living with the condition.

Batten's Disease

Advance for Nurses
Batten's is an inherited fatal neurodegenerative disease which includes loss of vision. Resources, support, and advice for accommodations.

Cataract

National Eye Institute
Causes, risk factors, symptoms, treatment, and current research on cataracts.
 
Sacramento Network of Care
This article explores the pros and cons of surgery, includes suggestions for daily living.
 
This site includes a searchable knowledgebase, an Ask the Doctor forum, videos, news, and article reviews.

CHARGE Syndrome

Information about CHARGE Syndrome, including special resource packets for new parents and professionals, a one-page fact sheet, a list of frequently asked questions, a newsletter, information on medical management, and online resources.
 
Perkins eLearning, Perkins School for the Blind
Perkins provides a series of webcasts that explore in-depth the special educational, developmental, and social issues for individuals with CHARGE Syndrome. This link takes you to a landing page of webcasts, and 2 tutorial offerings for continuing education credits.

Cortical Visual Impairment (CVI)

Cortical/Cerebral Visual Impairment
Perkins eLearning (Webinar)
In two one-hour sessions, the staff of the New England Eye Low Vision Clinic at Perkins dive deeply into the causes and impacts of cortical/cerebral visual impairments, and discuss the importance of collaborative care for children with CVI.  Session 1.  Session 2.
 
American Printing House for the Blind (APH)
Maryke Groenveld presents an introduction to CVI, including interpretation of visual information, assessment procedures, implications for intervention, and additional impairments.
 
Perkins eLearning Webcast
This webcast featuring Dr. Christine Roman-Lantzy provides information about the specific characteristic behaviors of CVI and provides information regarding the evaluation of functional vision.
 
American Printing House for the Blind (APH)
Dr. Mary Morse discusses the complexity of CVI, the differences among children with CVI, and the need for a variety of approaches.
 
American Printing House for the Blind (APH)
Practical suggestions for adapting schedule boards, light boxes, the bathroom, vocational activities, toys, walkers, and other materials.
 
Simplified Technology, Linda J. Burkhart
How to help children with CVI develop neurological pathways to make sense of what they see. Includes design adaptations and strategies to enhance vision, cognition and communication.
 
California Deaf-Blind Services
This fact sheet offers an introduction to neurological and cortical visual impairment, including a list of suggested instructional strategies.
 
American Printing House for the Blind (APH)
Discusses basic brain structure and causes of CVI, behaviors, assessment and intervention strategies; includes a checklist of behavioral characteristics.
 
Pennsylvania Training & Technical Assistance Network (PaTTAN)
24-page document has practical suggestions for early intervention, and strategies for pre-school, elementary, and high school; includes students with multiple disabilities.
 
American Printing House for the Blind (APH)
Occupational Therapist Donna Shaman has outlined an approach for educational teams to identify, evaluate, and educate children with cortical-cerebral visual impairments (CVI). The manual is printable from this link to APH.

Cortical Visual Impairment: Organizations and Resources to Explore

APH maintains a microsite specific to Cortical Visual Impairment, containing a wealth of resources, research, presentations, and strategies.
 
National Consortium on Deaf-Blindness (NCDB)
Includes articles, bibliographies and Internet resources.
 
Association for Education and Rehabilitation of the Blind and Visually Impaired (AER)
An overview of the visual system and how it works; how brain damage can cause disorders of vision; approaches to help students with CVI.
 
American Printing House for the Blind (APH)
Information on all aspects of cortical visual impairment (CVI), including introductory materials, sample goals and reports, environmental supports, intervention strategies, CVI products, research, and resources.

Diabetic Retinopathy

VisionAware
Symptoms of diabetic retinopathy and links to additional resources
 
Sacramento Network of Care
Information about treatment of diabetic retinopathy, tips for living with the condition

Glaucoma

A comprehensive source of up-to-date news and information about glaucoma.
 
Vision Aware
Basic information and links to additional resources about glaucoma.
 
Sacramento Network of Care
An overview of glaucoma and suggestions for living well with it.
 
Bright Focus Foundation
Formerly the American Health Assistance Foundation, Bright Focus provides consumer-friendly information about visual impairments like macular degeneration and glaucoma.

Glaucoma: Organizations and Resources to Explore

This site includes a searchable knowledgebase, an Ask the Doctor forum, videos, news, and article reviews.
 
Diagnosis and treatment of glaucoma; links to an online newsletter.
 
Information on glaucoma's impact on vision, living with the disease, treatment, and research.

Leber's Congenital Amaurosis (LCA)

Leber’s Congenital Amaurosis (LCA) is a rare, hereditary disorder that leads to retinal dysfunction and visual impairment at an early age – often from birth. Of all the retinal degenerations, LCA has the earliest age of onset and can be the most severe. The Foundation for Retinal Research and The Foundation Fighting Blindness both provide information and resources regarding LCA, which are linked here.

Leber's Hereditary Optic Neuropathy (LHON)

Families affected by this condition often refer to it as "the other Lebers" -- Leber's Hereditary Optic Neuropathy, a sudden, painless loss of central vision. About 100 people in the United States lose central vision due to LHON each year; thousands more carry a LHON genetic mutation, and they could suddenly lose their vision at any time.
 
Learn more about LHON causes, diagnosis and treatment through this informative website, and meet LHON families working together to provide support, services, and awareness.

Nystagmus

Basic description of nystagmus, FAQs, information for parents of school-age children with the condition.

Optic Nerve Atrophy

U.S.National Library of Health- Pubmed Health
Information on Optic Nerve Atrophy disorder, symptoms, behaviors, research and links to related sites.

Retinopathy of Prematurity

Retinopathy of prematurity—its history, a bibliography, and lists of resources.
 

Signs of Vision Disorders

Optometrists Network
A questionnaire for determining whether a vision evaluation is needed; includes links to related topics such as pediatric care, vision therapy, vision checklists and learning disabilities.
 
EyeHelp
Symptoms of poor vision: changes in appearance of the eye and some behavioral indications.
 
Center for the Partially Sighted
Warning signs and risk factors for vision loss in adults and children.
 
The Vision Council
Identifying vision disorders in adults and children.
 
VisionAware
This site lists observable signs of vision loss and disorders.
 
Prevent Blindness America
Symptoms of eye and vision conditions; information about potentially serious ones.
 
 
 

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